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Wednesday, July 31, 2013

We are coming home!!!!

Sooooo happy to report we will be home early afternoon!!!  It will be slow going as Eddie isn't very mobile and very unsteady but I'm getting 24/7 care. We love visitors and look forward to seeing y'all soon. Please schedule with nancy. Lunches would be fabulous!!  His spirits are good and he looks good. Thanks to everyone!!!

We love our visitors!

Hi!  When we met the doctor yesterday he told us that Eddie will need to rest for a week from the day he comes home. This most likely means he will be home all next week and most likely with our caregiver Reuben who is great. He would love, and I will appreciate, visitors and maybe a lunch brought now and then. If you know Eddie well you know sitting around is enough to drive him batty nuts!! He might not be super talkative and you don't have to stay long but  I know it would mean so much.  Smiles and hugs to all of you.

Tuesday, July 30, 2013

Skies are looking brighter

Hi - we just had a visit from the neuro PT who said eddie's coloring looks good and he is pleased with his progress.  He has ordered a PT evaluation to assess his safety if he was to go home which we are hoping is by tomorrow afternoon!  We will keep you posted and are so appreciative of all the notes you have sent (and the qualifying that no reply is needed!).  Thank you!!

Monday, July 29, 2013

In the beginning

Hi all. Sorry for the impersonal approach to this but I'm starting to be a bit overwhelmed by all your amazing emails and texts and thought this might be the best way to communicate and keep everyone in the loop. I will try to post but sometimes I might call on others to do for me.

Last week was a bit rough one with eddies motor skills deteriorating rather rapidly.  He had started a new medication on Saturday.  We had a fabulous two days at San yisidro ranch and were just adjusting since getting back.  Friday night after dinner Eddie had a bit of a seizure like episode and was rushed to the ER. They then admitted him early Saturday morning.  Tests have shown that he had some bleeding in the brain which caused the episode.  They also have seen that his blood platelets are low and this afternoon gave him a transfusion.

There is no update on when he will go home - step one is to get the platelets going and get out of bed and such.  He has foregone his treatment while in the hospital.  We will have to consider those options once he is a bit steadier again.

In the meantime, his spirits are fairly good.  I am holding my own certainly better when around him and the kids and saving my breakdowns for when I'm alone or with friends/family.  The kids are a bit messy.  Dylan mostly wants to stick close to home and visit when she is allowed.  Matthew is very physically needy but has gone on some playmates and camp.  They both leave next Sunday for 6 nights of camp at canyon creek which will be great for them!

We are welcoming visitors, I just ask that maybe you let nancy Isaacs know and she will help me coordinate meals, times, days so that Eddie doesn't get too tired.  She is reachable at nancy@nancyisaacs.com or 310-367-7933.  I'm new to this blog thing but I think I can see comments and answer accordingly or nancy will check, go through all questions at once and respond to all.

I can't even begin to tell you how much all the love and support means to us.  It's truly overwhelming and such the true spirit of humanity.  You are all amazing and we love each and every one of you for it!!

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